The Neural Basis for Frontotemporal Degeneration

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Updated on 19 February 2024

Summary

The purpose of this research study is to develop a better understanding of the genetic causes for frontotemporal degeneration (FTD), as well as Progressive Supranuclear Palsy (PSP) and Multiple System Atrophy (MSA). These conditions include difficulty with language and speaking, organization and planning, memory, and/or a behavior or personality change. It is hoped that such information will advance the knowledge of what causes these conditions and in the future lead to a diagnostic test and treatment for frontotemporal degeneration.

Description

Study activities include these core activities: • Blood draw • Neurocognitive testing • 3 Tesla MRI Optional activities include: • Lumbar Puncture • 7 Tesla MRI

FAQ

Principal Investigator: Murray Grossman, MD NIH funded Longitudinal

Details
Condition Pick's disease, Frontotemporal Lobar Degeneration, Frontotemporal Dementia
Age 18years - 85years
Clinical Study IdentifierTX1071
Last Modified on19 February 2024

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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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